Posts

Showing posts with the label CF Friends

Great Strides

Great Strides is Today!!! I'll be walking this morning with friends and family. We raised over $5,000 this year. Not bad considering our team is significantly smaller. This is for Eva, Janel, Laura, Lauren and all my other CF angels. This is for Lauren, Talana, Tabitha, Tricia, Angie, and all my CF Friends. This is for all the CFers who are little kids who really need a cure so we can spare them all the pain and suffering we have known. This is for all the CFers who have ever been sick, who are still sick, or who will ever be sick. And this is for me. Because I am on my way to learning to live my life - and I've spent ONE YEAR out of the hospital. And NINE MONTHS without IVs.

For Eva

Eva, also known as "65_RedRoses," is dying. I read her blog. I follow what is happening with the documentary they made about her lung transplant (and I can't wait until I can see it. When will it be released to the States?!?!). Part of me wants to BE Eva. I want to be successful at spreading awareness about Cystic Fibrosis. I want to be gorgeous even when I'm sick. I want to have the words to express how I feel. I write in my personal journal every night, but I feel like my blog should be much more. Updates on how I'm doing. Feelings about life. Wisdom. Hope. Love. I want to live my life with grace and love like Eva has. I want to be as much fun as Eva, but lots of times, I am grumpy. And I'm sarcastic. I think my sarcasm often comes off as negativity, but I don't mean it that way. In my brain, my thoughts about my life and my disease(s) are hopeful. Tonight, I would like to quote some of my favorite things that Eva has written on her blog...