Learning To Live

I haven't posted about the Magical Drug of Magic-ness because I am a chicken. Last night I went to my CF support group and I got some backlash from a couple people. I was called selfish and a criminal. I ended up crying. One person was generally concerned for my well-being and making sure I'm still going to a doctor. This whole thing made me frustrated. I was hoping to get applause because I'm doing so well. This is why I haven't yet written here about the drug. I'm scared my readers will scream back with negativity. I realize I don't have that many readers - my dad, Chris and Kyra, and a couple others. *Meh*. I know they support me 1000% so I really shouldn't worry what other people think of me. But I do worry what others think - at least a little. -- Carla's on the go! Posted from her iPhone.

I have switched clinics.  I now go to a clinic 1.5ish hours from my house instead of the one 15ish minutes from my house because if I drive 1.5 hours, I get to see a doctor.  And a nurse, a social worker, a respiratory therapist, and a dietitian.  Pretty good deal.  Here I only got to see a nurse, a pharmacist (REALLY no help at all - especially when she would criticize my psych meds.  Seriously?  You are a pharmacist in a CF clinic.  You think you have the authority to criticize what my psychiatrist has prescribed me? Shut up.), MAYBE my social worker if I was there on a Wednesday, and the nurse practitioner.  Note that last one.  A Nurse Practitioner, while helpful, is NOT a pulmonologist.  I am sorry.  You did not go to medical school, please send me the person who did. Also, I got into some trouble at my home clinic because of an investigational medication and me refusing to give it back even though I dropped out of the stud...

Learning to Live is hard.  I want to live happy, healthy and free.  I get frustrated when sad things happen.  I feel it shouldn't affect me because I'm no longer depressed.  I need to accept that sad things happen and it's okay to be sad.  Last week my puppy got sick.  We got Snowball when I was 10 and my brother was 7.  We named him and that's as creative as we could get.  He was white and flluffy, so Snowball made sense.  If I got a dog now I'd name him Einstein, Schrodinger (although that's a better name for a cat), or The Doctor (Doc for short).  That's a different story - the "Why Carla Can't Have A Dog" story.  So we'd had Snowball for more than 13 years.  He truly was my mom's dog - he followed her everywhere.  But we all loved him so much.  He was the best dog ever!  There was no end to the tricks and quirks of Snowball. Some of my favorites are when he used to steal my dad's sandal - and it wa...

RIP Snowball Napkin 12.20.1996 - 6.15.2010 You are the best dog anyone could ever have. I love you forever and always. -- Carla's on the go! Posted from her iPhone.

I'm loving the 365 photo idea. I LOVE taking photos, so this is right up my alley! Here are a few I love: -- Post From My iPhone

I have downloaded the iPhone app Project 365 which encourages you to take a photo every day. I love this idea and I plan on trying to post some of my favorites here. Most of the photos will be take. With my phone, so we know what quality that will be - but i'd like to also try and take a photo or two every day with my regular camera, too. Here is today's photo. The beds in our hotel room in Springfield, IL. My dad and I are down here to visit my grandparents. -- Post From My iPhone