Learning To Live

I'm deciding what I want in life.  I am figuring out what is most important in life.  I am figuring out how to maintain my current good health and trying to decide what to do with it - with all the extra energy and time.  I know, this could be a big, important post.  Or it could be a short little one with some goals.  I'm leaning towards the 2nd option because I need a nap, but I've got some very important, mind-blowing ideas rattling in my head and I want to get them out there.  I want to keep babysitting.  I want to be a better dancer. I want to enjoy my life and have plenty of time for family and friends. I want to have time for my mindless TV and crafts. I want to be out there speaking about cystic fibrosis.  I want to speak at CF Foundation events.  It's that last goal I want to talk about today.  I am different.  I'm different from many CF patients.  I am compliant to a point - if it's not working for me, I won'...

I've decided to start over. Right now. From now on I'm doing things right. I am healthy right now and I really want it to stay that way as long as possible. I've decided there are several things I must do daily to maintain this health. These things are (in no particular order): 1. Brush my teeth. I'm hoping my wisdom teeth will come in and I won't have any more infections and I won't have to have them out before January, if at all. I know brushing your teeth daily doesn't sound that hard, but sometimes it is. Sometimes I just hang out in my PJs for hours and then I forget when I get dressed. Sometimes I'm too lazy. Sometimes I'm too sick. Sometimes I'm too sad. I'm not chicken to admit that sometimes I don't brush my teeth every day. But from now on I am going to try. 2. Have chest PT and/or Vest daily. Sometimes I skip my vest or chest PT when I am dancing or busy or gone. I am going to try and do my vest or chest PT every...

"Everybody Look Left! Everybody Look Right! Every where you look I'm standing spotlight! Not Yet!" It's so true. I have so many big plans. Big things I want to see and do! I want to get my book published, first. Well, I should finish writing it first, but I also think maybe I should have an editor look at what I have before I finish. Then my next goal is to get parent/child support groups for CF started here in Wisconsin. Third, I want to help set up adult support groups for CF nation-wide. I know our CF group is working on it slowly but surely, but I want to be the one traveling and meeting people and helping to oversee the start-up of the group. I'd love to see all these cities in the US and help all the people with CF at the same time. My last goal would be to oversee the start-up of CF support groups for kids and parents nation-wide. Those are pretty much my life goals. Right now my OCD tendencies are kicking up really bad. I called my parents crying bec...

Old habits die hard. When I got bored, I immediately wandered on over to Dooce.com to try and finish reading all of the archives. Like I've said before - I will be tragically sad when I finish. Hopefully she is a blogger like me - one who updates many times a day so as not to disappoint. This is probably my favorite entry ever I especially LOVE this paragraph, because Heather Armstrong laid out all my hopes and dreams in one paragraph: "But last night was filled with such joy, such brilliant, tingling happiness, the kind of experience that is so fulfilling that you want everyone you know to go through something like it. And so today I would tell my friend, look, you need to go out, find some guy who loves the way you look in the morning, can forgive you when you lose your shit, thinks that the smell of your neck is better than a football game, and then take that guy and have a lot of grueling sex, over and over and over again, so much that when you roll over next to him wit...