Clinical Update
I have switched clinics. I now go to a clinic 1.5ish hours from my house instead of the one 15ish minutes from my house because if I drive 1.5 hours, I get to see a doctor. And a nurse, a social worker, a respiratory therapist, and a dietitian. Pretty good deal.
Here I only got to see a nurse, a pharmacist (REALLY no help at all - especially when she would criticize my psych meds. Seriously? You are a pharmacist in a CF clinic. You think you have the authority to criticize what my psychiatrist has prescribed me? Shut up.), MAYBE my social worker if I was there on a Wednesday, and the nurse practitioner. Note that last one. A Nurse Practitioner, while helpful, is NOT a pulmonologist. I am sorry. You did not go to medical school, please send me the person who did.
Also, I got into some trouble at my home clinic because of an investigational medication and me refusing to give it back even though I dropped out of the study... and Yes, that IS part of the story of the Magical Medicine of Magic-ness. So I have no idea how the people in the clinic feel about me keeping the Wonder Drug. I have no idea because I haven't seen them since August (I know - BAD CARLA!). This is the first time EVER I have gone any longer than 3 months without seeing a CF Doc. Actually, it's the first time in recent years that I have gone any longer than 3 months without IV antibiotics - and I'm approaching TEN months without IVs and have passed ONE YEAR without being hospitalized. Love it! *Does the SUPER HAPPY DANCE!!!*
Anyways, back to the fact that I haven't seen them since August. I haven't been to clinic since August and I haven't done PFTs since October - Again, BAD CARLA!, I know, but I have been feeling great (which is no excuse - go do your PFTs!). But, clinic hasn't called or written or sent smoke signals to ask where I've been, so I wonder how much they actually care about me anyways.
So this new clinic - I've been there before. And I've seen this new amazing doctor before. And evreything was just as amazing and wonderful as I remembered - and even moreso. I loved that I walked in and wasn't exhausted by the time I got to the clinic. I loved my PFTs were the same as in October and better than the last time I was there (which was a year ago in February).
Everyone was so nice and loving and *le sigh* soooo different from my regular clinic. So..... So long! Farewell! Auf Weidersein! Goodbye! Gooooooodbye! And Good Riddance. It'll be nice not to have to fight with people every time I want to know how my health is doing or I get sick. Old clinic, you can BITE ME. I LOVE new clinic!
My PFTs ROCK. They are AWESOME and WONDERFUL and SO MANY WORDS I CAN'T THINK OF RIGHT NOW! I. Am. Healthy. And I love it!
So those are two things I love today: New Clinic and My Health!!!
Here I only got to see a nurse, a pharmacist (REALLY no help at all - especially when she would criticize my psych meds. Seriously? You are a pharmacist in a CF clinic. You think you have the authority to criticize what my psychiatrist has prescribed me? Shut up.), MAYBE my social worker if I was there on a Wednesday, and the nurse practitioner. Note that last one. A Nurse Practitioner, while helpful, is NOT a pulmonologist. I am sorry. You did not go to medical school, please send me the person who did.
Also, I got into some trouble at my home clinic because of an investigational medication and me refusing to give it back even though I dropped out of the study... and Yes, that IS part of the story of the Magical Medicine of Magic-ness. So I have no idea how the people in the clinic feel about me keeping the Wonder Drug. I have no idea because I haven't seen them since August (I know - BAD CARLA!). This is the first time EVER I have gone any longer than 3 months without seeing a CF Doc. Actually, it's the first time in recent years that I have gone any longer than 3 months without IV antibiotics - and I'm approaching TEN months without IVs and have passed ONE YEAR without being hospitalized. Love it! *Does the SUPER HAPPY DANCE!!!*
Anyways, back to the fact that I haven't seen them since August. I haven't been to clinic since August and I haven't done PFTs since October - Again, BAD CARLA!, I know, but I have been feeling great (which is no excuse - go do your PFTs!). But, clinic hasn't called or written or sent smoke signals to ask where I've been, so I wonder how much they actually care about me anyways.
So this new clinic - I've been there before. And I've seen this new amazing doctor before. And evreything was just as amazing and wonderful as I remembered - and even moreso. I loved that I walked in and wasn't exhausted by the time I got to the clinic. I loved my PFTs were the same as in October and better than the last time I was there (which was a year ago in February).
Everyone was so nice and loving and *le sigh* soooo different from my regular clinic. So..... So long! Farewell! Auf Weidersein! Goodbye! Gooooooodbye! And Good Riddance. It'll be nice not to have to fight with people every time I want to know how my health is doing or I get sick. Old clinic, you can BITE ME. I LOVE new clinic!
My PFTs ROCK. They are AWESOME and WONDERFUL and SO MANY WORDS I CAN'T THINK OF RIGHT NOW! I. Am. Healthy. And I love it!
So those are two things I love today: New Clinic and My Health!!!
Comments
Its great to hear that your PFTs are so high.