Learning To Live

This is a post where I write about a few things.  Goals, recent developments, etc. First, I have been doing the 365project since around Memorial Day - all the photos are on my phone, but when I updated the software, I lost all the 365 data- like what days the photos went with and what I said about them.  That's frustrating.  So I'm starting again - and trying to reconstruct the last couple months.  This time I am backing it up on 365project.org.  Hopefully this will be good.  Once I get it all set up, I will post  the link to where you can see the lame photos I take with my iPhone :-) I'm hoping to post some photos from my digital camera too, since it takes much better photos.  Next, I have some goals: Clean the house Finish my quilt Finish the two scrapbooks That's about it for now, but that is what I want to do during August - and August is shaping up to be a VERY busy month!!!  I'll have to schedule days where I sleep all day, ...

This is it.  The post I've been wanting to put up since November.  This is The Mannitol Post.   It's a long story.  Last summer I decided I would participate in two different clinical trials - one for inhaled powdered Cipro, and the other for inhaled powdered Mannitol.  I did the Cipro study first.  It was a month long and I had to show up for PFTs and check-ups every week, but it was only a month.  No. Big. Deal.  The next study was going to be more challenging and taxing.  Remember, I had agreed to babysit more regularly starting in August, and I was loving the babysitting.  I even did some babysitting where I had to take my afternoon IV dose with me.  That was a rough week.  Actually a rough two weeks.  I did IVs for the first time all by myself - with no help from anyone.  I did the IVs at the end of the Cipro study, so I had to wait to start the Mannitol study.  The Mannitol Study.  Let me start off...

This is my clean closet and bedroom!!! -- Carla's on the go! Posted from her iPhone.

My closet is CLEAN.  C. L. E. A. N.  Can you believe it?  ALL of my clothes (minus the ones that need washing...) have a home.  That's right, there are NO clothes on the floor.  They are all either in a drawer or hanging in my new beautiful closet.  Okay, yes, the dining room is slightly more cluttered now, but not bad.  I have a bin of shoes and a huge bag of clothes to donate.  I have piles of clothes for my bonus siblings Kyra and Sarah.  And I was so excited to call my parents and tell them about my new closet and how my clothes finally have a home and I can keep it this way... and my mother says, "Well, we'll see."  Because she has absolutely no faith in me whatsoever.  None.  Honestly, I'm not making this up - if there's something that needs doing, my mother doesn't believe I can do it - BECAUSE I'M NEVER GOOD ENOUGH for her.  So to give her the giant finger, I'm doing a million loads of laundry so everything...

The 4th of July weekend was jam-packed for me.  I had such a great time with everyone and doing so much stuff!  It was party, party, party and hanging out with people I hadn't seen in a long time.  It was fabulous! I have finally come up with a term I really like for the really special people in my life - the people who are like brothers and sisters to me, but who aren't technically blood-related.  From now on they are my Bonus Siblings.  These are people I've grown up with, friends since I was very young, and people I'm so close to we may as well be related.  I'm so lucky to have these wonderful people in my life.  Here's to my Bonus Siblings - Emily, Margaret, Sarah, Chris, Kyra, and Chase.  I love you guys!!!

Here is a great reason I'm not having success with the online dating thing.  Here is one man's profile.  It's so absurd I just had to post it.  This man is 46 and lives in my state - but 46 is too old for me.  He contacted me, and I pretty much just ignored the email.  Here is why: Tall, dark and handsome I am told by my kids! REALLY! Find out for yourself. I love to be spontaneous, daring and wild when the time permits. Honesty, truthful, faithfulness & good communication are the core for any relationship would you not agree? Someone that would compliment me as I would to her. My kids live with me full time. This is not the norm out there, yes I know! I would never change it for the world. They are my life! LQQKING for a lady to share my life with. They are getting older now and pretty much take care of them selves unless they need money! LOL! My almost 17 year old has three jobs and gets great grades. He loves his PS3 and Rock Band. Lets get to...

I'm deciding what I want in life.  I am figuring out what is most important in life.  I am figuring out how to maintain my current good health and trying to decide what to do with it - with all the extra energy and time.  I know, this could be a big, important post.  Or it could be a short little one with some goals.  I'm leaning towards the 2nd option because I need a nap, but I've got some very important, mind-blowing ideas rattling in my head and I want to get them out there.  I want to keep babysitting.  I want to be a better dancer. I want to enjoy my life and have plenty of time for family and friends. I want to have time for my mindless TV and crafts. I want to be out there speaking about cystic fibrosis.  I want to speak at CF Foundation events.  It's that last goal I want to talk about today.  I am different.  I'm different from many CF patients.  I am compliant to a point - if it's not working for me, I won'...