I thought I was having the WORST Fourth of July weekend EVER. Like, THE. WORST. I'm in the hospital on my favorite holiday and my husband can't be here because he's getting over a virus. My Dad can't visit because he's on call. No visitors. No fireworks. No sparklers. No barbecues. No picnics. No parades. No delicious brats or hot dogs. Not even a decent burger anywhere. No fun at all. Just a whole weekend of me, Netflix and my quilting.
My husband and my mother-in-law are packing our house for a move, and I want to be there to be involved, which has caused some friction, which has stressed us all out. So not only is my weekend no fun at all, but it's also stressful.
And lonely - did I mention the gut-wrenching loneliness? Despite the medical students, residents, doctors, nurses, respiratory staff, and various other staff, it's really isolating and lonely in the hospital. I often feel forgotten, too. Sometimes, I just want to be surrounded by the people who understand me best. It can be really overwhelming telling your life story to new person after new person.
So my weekend was already awful, stressful and full of loneliness. Then I'm doped up on Benadryl which makes me sleepy. I was cranky, grumpy and thirteen other unfriendly dwarfs. My doctor had told me to go to the 9th floor around 9:30 on the 4th so I could see the fireworks. I had been arguing with my husband and feeling sorry for myself so I decided I was in no mood to do anything fun. I had decided there was no way anything - not even fireworks - could make my weekend better.
At about 9:20 last night I changed my mind. I decided that it was up to me to try and make the best of my terrible, horrible, no good, very bad hospital stay. I put on my shoes, got unhooked from my IV, and wandered towards the 9th floor. I had no clue how to get there, but a very nice resident and medical student let me ride the staff elevator up with them.
I arrived at a little sitting area with giant windows facing south. To my amazement, we could see more than one fireworks show going off. In all, we could see EIGHT fireworks displays. EIGHT. I knelt on the floor and rested my head on my folded arms on the windowsill. I could see the fireworks and my reflection in the glass. My glasses, my French-braided pigtails, my new pajamas and a little bit of fog on the glass from my hot breath. All good things. I had washed my glasses - something I don't always have energy to do when I'm in the hospital. Also, I had the energy to wash up and braid my hair after my best friend came (a visitor!) and brought me new pjs to wear. And I had enough breath to fog up the window. I had enough breath to get me from my hospital room to the 9th floor lounge without a wheelchair. And now I had eight fireworks displays at once.
In the glass I saw a tear stream down my cheek. I suddenly felt very foolish. I have so much to be thankful for, and I was wasting time choosing to be grumpy. I was choosing to not appreciate what I have and instead focusing only on the things I couldn't have.
My heart filled with a sense of love and hope. I sat there and watched the fireworks until all the displays were done. After the last embers fell, I said a silent prayer of thanks and returned to my room. I called my Dan to tell him about my wonderful experience and to apologize. I wanted to thank him and his mom for doing all the work I don't have the energy or health to do. And I just wanted to hear his voice. Dan tucked me in from afar, meaning he stayed on the phone with me while I got comfy and until I was almost asleep. And while that's not as good as being in our bed together, it's good enough. It's the best I've got available and I am grateful for it.
I'm extremely grateful for my best friend Sarah and her husband for going to Kohl's yesterday to get me more pjs and things Dan was planning on bringing me this weekend, but couldn't. It was so wonderful to change into clean pjs. It was wonderful to spend some time chatting with people who know me well and who were also in the same room as me.
I'm thankful for the strangers who have helped me in the cafeteria when I have been trying to juggle my IV pole, my wristlet, my phone, and a tray of food. Their kindness means so much. It restores my faith in humanity a little.
I'm thankful I'm getting better. My lung functions were up on Thursday and hopefully they'll be even better on Monday when I test again. I'm thankful for the energy to quilt while I'm here and the attention span to watch Netflix. Sometimes I'm so sick all I can do is lay there.
I'm thankful and lucky.
France won the World Cup and all I got was a lesson in how to chill out - On Sunday I befriended a 20-year-old French kid named Etienne while sitting on the concrete railing of a walkway leading down to the Seine. We were gathere...
5 days ago