Not Sure

I haven't written in almost a week, and I'm not quite sure what to write about. Hopefully I will look through my photos and find something.

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Change of Plans

I had my weekend all planned out, and all I had to do was last through it. I knew that was going to be hard when I realized how bad my lungs were on Tuesday. Dancing was nearly impossible. Yesterday and today I have worked hard to get things ready for the benefit tomorrow night - and I called clinic and we arranged for me to be admitted on Saturday. We'll see if I make it to the elections or not. I'd like to, but maybe it's pointless. I think I'll call clinic tomorrow and ask them to see if my room could be ready by, oh, 10 am or something like that. That way, maybe by evening I'll have some antibiotics running. *le sigh*. I'm doing this by myself. I and Mom decided that she can come down later in the week if I need her - which I might. Right now, I'm pretty fucking sick. I'm going to bed at this ridiculously early hour so maybe I have a prayer of lasting through tomorrow. I also realized this evening how few people understand this. They don...
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CF Contact

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Me and Trinity: What a cutie! Chest PT on a baby: The Cystic Fibrosis Foundation discourages any contact among CF patients. Personally, I think this is overreacting at its best. Yes, some precautions need to be taken, but it has been blown totally out of proportion. I am writing this because the other night at Concert on the Square I held Trinity. Her mom handed her over to me, and we were talking and then she told me that Trinity has CF. I asked if I should take precautions and her mom said that it was okay for me to interact with her - and I feel that as long as the parent says it's okay, it's okay with me. And I did her chest pt - and it was a nice break for the parents. They have three children under three and two of them have CF. They have a 3-year-old with CF, an 18-month-old without, and Trinity, 2-months-old, with CF. If any family needs a break it's this one. I have always wanted to work with CF kids - and I know how much the CF Foundation would have nothin...
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A word about my sinuses

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