I'm trying to find a new CF doctor. I would like to see either Dr. Runo or Dr. Meyer. Dr. Runo is my first choice.
I still can't believe that my CF doctor yelled at me, called me crazy, and refused to see me when I was sick. It's just another incident to add to the "my parents and I knew what we were doing and the doctor didn't believe us" list.
When I was a toddler, my first CF doctor, Dr. Brunz, refused to treat me with antibiotics when I was obviously sick. I was so sick that I had dark purple circles under my eyes. My mom called my dad and Dad brought home antibiotics for me that night. Since he's a doctor, he just perscribed them for me.
Then I was three and Dr. Brunz retired. My parents had issues with the billing department in Milwaukee, so they took me to Madison to see a new doctor - Dr. Green. Dr. Green was the person we were looking for. He believed in treating CF aggressively and we never had problems with him. He was my doctor for 17 years, and I miss him. I wish he were still my doctor - but he's a pediatric doctor and I'm too old. I would have to be hospitalized in the new hospital with the giant rooms and the DVD players and... wait, maybe this doesn't sound so horrible. I doubt they'd let me switch back now that I've been "an adult" for more than a year.
Basically they let you do whatever you want when you're in pediatrics. They let me out of the hospital every day for five weeks to go to class. They let me out to go dancing. They let me out to go to dinner or to a show or just to go home and take a nap. It was great. Oh the two or three times I was hospitalized on Peds. How I miss it.
I have placed a call to the pulmonary clinic to see if I can switch to Dr. Runo. They have yet to call me back - and I am scared as to what they are going to say. I don't know what to do.
I still can't believe what a doctor did to me. I know the story has floated around the entire clinic - I don't know if anyone else will be willing to take the "crazy girl" on as a patient.
I don't know what to do. I hope it all works out.
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