So I read this book recently, I may have mentioned it - and pretty much it gave me the self-confidence to actually challenge my health care providers without being a huge bitch about it. Name of book: "Sick Girl Speaks" - and actually, in all honesty, I had never heard of this book two years ago when I wrote an essay with the same title. Crazy how us CFers think alike. Now I'm going to have to get her permission to use the title for my essay, which isn't a big deal, she's great. And if she'd rather I don't use it, that's cool too. I'll come up with something else.
Anyways, back to challenging my quality of care.
I don't remember the last time I saw my CF doctor. Probably last February or March when I first met him. Yeah, that was the first time I officially met him as a patient of his, and the last time I saw him. I don't like this. Not one bit. But for now, it seems that my parents have convinced me not to challenge my own care.
My parents have told me that as long as I'm not having severe problems with my doctor (he orders whatever I tell them I need), I shouldn't mess with it.
I have heard of a brilliantly wonderful doctor in Milwaukee, and I would like to see her. Possibly have her consulting on my care from Milwaukee, but I would get most of my treatment here in Madison.
I don't know what to do.
I started this post last night when I was convinced that I needed to challenge my care and that I was going to for sure see the great and powerful woman in Milwaukee. Now my parents have talked me out of it, for now.
My Very True and Important Book Report on Charlotte’s Web, Part One - [image: charlotte_featured] While we have all been motivated to take on more of an activist role in our daily lives, we also need some intermittent distract...
9 months ago