Maybe It's Barely

Some may say that I'm barely making it - but I say I'm doing a pretty good job.

Today I'd like to discuss CF. I was reading an article and came upon this sentence:

"It's also extraordinarily deadly. While modern medical advances have allowed many patients to live into their 20s and 30s, about 60% of kids who have it don't live to see their 18th birthday."

I am too exhausted to get into this now, but tomorrow I plan on revisiting the topic:

The real truth behind the CF Foundation's "Median Survival Age"

And maybe I'll talk about my Inconsiderate Brother... Well, he was inconsiderate today.

Comments

Unknown said…
I had an article written about me my sr. year in high school in a local newspaper because I won a scholarship. I thought I did a really good job explaining to the lady what CF was and how my vest worked. When the article was published, it said something about me having to wear a vest at night that blows air into my lungs so I can breathe... Sometimes I think many journalists are hurrying to meet deadlines and mess up the facts when they aren't familiar with the subject, but it irked me to NO END...

Popular posts from this blog

CF Contact

Change of Plans

A word about my sinuses