Maybe It's Barely

Some may say that I'm barely making it - but I say I'm doing a pretty good job.

Today I'd like to discuss CF. I was reading an article and came upon this sentence:

"It's also extraordinarily deadly. While modern medical advances have allowed many patients to live into their 20s and 30s, about 60% of kids who have it don't live to see their 18th birthday."

I am too exhausted to get into this now, but tomorrow I plan on revisiting the topic:

The real truth behind the CF Foundation's "Median Survival Age"

And maybe I'll talk about my Inconsiderate Brother... Well, he was inconsiderate today.

Comments

Unknown said…
I had an article written about me my sr. year in high school in a local newspaper because I won a scholarship. I thought I did a really good job explaining to the lady what CF was and how my vest worked. When the article was published, it said something about me having to wear a vest at night that blows air into my lungs so I can breathe... Sometimes I think many journalists are hurrying to meet deadlines and mess up the facts when they aren't familiar with the subject, but it irked me to NO END...

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