The Friends of Pepe Blog has ended. I'm sad to see it go, because I'm hooked on her story, and these CF stories become my stories. They are what could happen to me - and I want to know how they end. Pepe is very sick and post-transplant a little more than a month. They are recommending a second lung transplant because the pneumonia in her new lungs is just too bad. I want to know what she decides, what she does, and how it turns out. I know that there is a good chance she could die waiting for this second pair of lungs - she was essentially dead when they did the first transplant. I didn't think she'd make it this far... but now I'm deeply saddened that I won't know how our story ends.
This is what I wrote on the last post:
This has already been said by many times, and I'm sure another CFer has already commented, but FOP, we're sad to see you go. Gina, we hope you continue forward and it only gets better from here. I hope if I am ever as sick as you that I will have friends who are kind enough to keep my extended family and friends up-to-date with what is happening in the hospital.
I know when I am in because of my CF I don't always like to have visitors besides my mom. I even hate having the doctors and nurses see me sick - it's just how I am - so I understand the courage it takes to tell the world how really sick you are.
You, Gina, are in my thoughts and prayers. You are the strongest person I have ever witnessed. I wish I could meet you. Here's hoping for a second pair of lungs if you want them - or for peace in whatever you decide.
Lots of love from another hospitalized CFer,
And it's true. I've been so sick here in the hospital this time I haven't wanted to see anyone but Mom. Mom had to give me a shower yesterday - and I just didn't bother today. Yes, my mother has to bathe me I'm so sick... but at least I could get out of bed and sit in the shower while my mom washed me - I didn't have to have her give me a bed bath. So there's that. If there's a good side to your mother having to bathe you at 22, I guess that would be it.
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