Today is a bad day so far. Maybe it's because I've done basically nothing. Or maybe it's because I'm having a bad day in terms of depression.
Does anyone know if with depression there are good days and bad days, even when you're on your therapeutic dose of medication? I hope not. I want just good days. I want Sunshine and Lollipops.
Maybe I'm sad because I keep finding new blogs about little kids who have died from CF - at like, age 12. I hate that, but why can't I stop reading? The medical stuff I've found out is maybe too much for me. I'm now trying to digest what end-stage CF looks like, because I've never physically been near a friend who was end-stage. The two friends I've had die in the last year weren't extremely close friends, so I wasn't there near the end.
Now I have read what end-stage looks like, and I know enough to know that it is bad. Very, very bad. And maybe I'm finally scared for me - but even more so, I'm scared for my mother. My mom just called to tell me what they are getting me for my birthday/Christmas... and it's something big I was planning to save up for. I knew it might take me a year or more, but I was going to save for it - and I had mentioned to Mom that I was looking at sizes and asked what size hers was - and then she decided to buy me one. Which I'm happy about - but at the same time I wanted to do it on my own. I wanted to do SOMETHING on my own. The IKEA furniture will be mine - bought all by myself and on my own, so that is good.
I don't know why Mom decided to get me this - besides the fact that it will benefit her too when she is here. Maybe it's her "you're doing really well on your own and getting over the depression" present. She likes to buy things when I'm doing really well and when I'm really, really sick. It's her way of celebrating and coping.
I have read the blogs of moms who have lost their daughters to CF - and I know that the last thing I ever want to do is leave my mom behind. I know my death would hurt her the most, and I don't know if she could recover from it. I know my mom very well, and I don't know that she could handle the grief. I don't want to leave my mom. I always want to be here for her. I love my mom.
My Very True and Important Book Report on Charlotte’s Web, Part One - [image: charlotte_featured] While we have all been motivated to take on more of an activist role in our daily lives, we also need some intermittent distract...
6 months ago