Me and Trinity:
What a cutie!
Chest PT on a baby:
The Cystic Fibrosis Foundation discourages any contact among CF patients. Personally, I think this is overreacting at its best. Yes, some precautions need to be taken, but it has been blown totally out of proportion.
I am writing this because the other night at Concert on the Square I held Trinity. Her mom handed her over to me, and we were talking and then she told me that Trinity has CF. I asked if I should take precautions and her mom said that it was okay for me to interact with her - and I feel that as long as the parent says it's okay, it's okay with me. And I did her chest pt - and it was a nice break for the parents. They have three children under three and two of them have CF. They have a 3-year-old with CF, an 18-month-old without, and Trinity, 2-months-old, with CF. If any family needs a break it's this one.
I have always wanted to work with CF kids - and I know how much the CF Foundation would have nothing to do with an adult with CF working with other CFers. I always wanted to be a CF doc and I still have that urge, because I know I could be a better CF doc - at least a better adult CF doc. The pediatric docs are pretty good - but the adult ones. Well, let's not go there.
If there were a pill to magically make me better - I'd go to medical school. Or nursing school. I might get my PhD in nursing and/or social work. I'd like to be a social worker helping CF kids and adults. I just have this urge to help every single person with CF - and it's so hard to get anything "real" done with the CF Foundation. Yes, we raise tons of money and that is good for research, but I feel there is something large missing in terms of helping patients deal with being a CFer.
That's how I feel.
My Very True and Important Book Report on Charlotte’s Web, Part One - [image: charlotte_featured] While we have all been motivated to take on more of an activist role in our daily lives, we also need some intermittent distract...
10 months ago