Friday, July 18, 2008

No Longer a Bad Day

I'm feeling better- I was just tired and overdosed on bad CF stuff. That end-stage blog stuff is hard to deal with, but I feel it's important. Not only for other CFers, but for the public to see how desperately we need to raise money to help these kids - the kids who may not get a chance to see high school - or even middle school. While high school may not have been my favorite period in my life, I wouldn't trade it for the world. I did some amazing things in high school - some things I think every kid should get to do. I went to Paris with the Marching band, just to name a major priceless thing I did. I played clarinet in Fiddler on the Roof, and piano for the Swing Choir. My mentors from high school are the greatest role models a teenager could have.

I find these CF kids inspiring and I look up to them, even though I am older - but at the same time, I would do anything to trade places with them, even for a little while, so they could be happy and worry-free. So they could experience life without the breathing troubles.

I know I have the severe type of CF, and I'm not always happy with my lung functions, but I can still do so many things - and I am so grateful for that. That's why today is a good day.

Love,
Carla

1 comment:

Alice said...

Don't stress too much about end-stage CF... I also never saw someone die of CF, and didn't even realise I was end-stage, which is a blessing. When I saw the tx Dr the first time, I thught he'd tell me I must come back in 5 yrs time... he told me I was a late referral. So before I knew it I was listed, and now I can breathe.. My point is basically that worrying is like sitting in a rocking chair. It keeps you busy but gets you nowhere. So just enjoy what you can still do to the full, and don't have any regrets...

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