Comments

To the CFer who keeps commenting here and stating his/her opinion on how I don't know how to live my life... stop reading my blog.

This was a fun comment:

"I never get post-hospital depression. Usually when I am out of the hospital, I'm a bit overjoyed to be honest. My hospital IS structured. Don't act like your hospital and life are so different from mine. Essentially we are the same people except I know how to deal with life and you don't. "

Yes, I am overjoyed too... and then I'm overwhelmed for a couple days. Fuck you. We are NOT the same people. If you also suffer clinical depression, anxiety, post-traumatic stress disorder, restless legs syndrome, fibromyalgia, and diabetes then you can tell me we are the same.

Also, I don't go around telling people how horrible they are at living their lives.

And this blog is a glimpse into my life. A glimpse on how I deal with my CF and various other bullshit that I deal with. Usually I don't tell you how often I stand in my kitchen and dance and sing at the top of my lungs. I don't tell you about how much I enjoy driving in my car with the sunroof open singing to a mix my brother made. I don't talk about the skipping or all the dancing I do in my own home. I don't talk about how much I really love life. Maybe I should. Maybe you would shut the fuck up, evil CF commenter.

Comments

Chris said…
Transitions are always difficult, especially when moving from a very structured environment to an unstructured one, as you pointed out. Perhaps the reader in question is pampered by those that take care of him/her and he/she is given structure all the time. Unfortunately, that results in someone who lacks responsibility, consideration, and independence.

I'm proud of you Carla. Don't let such fools ruin your day.
May 21, 2008 at 5:34 PM
Anonymous said…
In the words of Hannah Montana: "Life's what you make it."

Lets see how many more conditions you can list... The pity factor is rising and rising. Maybe you should just tell us about dancing and singing and happiness instead of complaints and sadness. You are the one making your life seem so bad. If you would just stop looking at all the negativity and focusing on all of the bad, then it would not be so irritating.
May 21, 2008 at 6:31 PM
Unknown said…
I think somehow the above commenter builds him-/herself up a little by making you feel bad. To seek someone out and purposefully and continually beat them down by making cruel comments--over and over again--is just plain malicious.

Whether or not Carla lives her life "the right way" according to any of us, constantly insulting her is nothing but selfish, immature, and cruel.
May 21, 2008 at 9:42 PM
Post a Comment

Popular posts from this blog

CF Contact

Image
Me and Trinity: What a cutie! Chest PT on a baby: The Cystic Fibrosis Foundation discourages any contact among CF patients. Personally, I think this is overreacting at its best. Yes, some precautions need to be taken, but it has been blown totally out of proportion. I am writing this because the other night at Concert on the Square I held Trinity. Her mom handed her over to me, and we were talking and then she told me that Trinity has CF. I asked if I should take precautions and her mom said that it was okay for me to interact with her - and I feel that as long as the parent says it's okay, it's okay with me. And I did her chest pt - and it was a nice break for the parents. They have three children under three and two of them have CF. They have a 3-year-old with CF, an 18-month-old without, and Trinity, 2-months-old, with CF. If any family needs a break it's this one. I have always wanted to work with CF kids - and I know how much the CF Foundation would have nothin
Read more

Abuse

 Abuse. This is going to be long, but it’s important.   If you only read the beginning, I want you to know:   If you are a survivor of abuse, or going through an abusive situation, you are not the abuse.   You don’t have to let it define you, and while it’s hard to move on, you can.   I want to end the stigma for abuse victims – which is why I’m writing this.   I want there to be stigma for the abusers, not the abused.   I need to practice saying, “My mother is abusive.” I don’t know why it still hurts so much so long after it happened.   I know she still hates me.   My dad has to be careful mentioning me to my mom or she’ll flip out.   Why does it bother me so much that someone who could be so awful to me doesn’t like me?               A few days ago – January 10 th , a memory popped up of a note I had typed in 2008.   The gist is, I was sick.   My mom was staying with me and I was doing home IVs.   Keep in mind I was 21 when this happened.   I packed and took my 9pm IV dose w
Read more

Social Media Break

Today, on Facebook I posted, "I want to delete my social media apps for the entire month of October, or until I'm feeling better, but I know I'll never be able to do it.  I rely on photos of friends' kiddos and food and sewing projects to keep my spirits up, and I worry about my CF and Transplant friends, and I want to stay in touch with everyone.  I want to encourage my friends who are also going through tough things and just be there to support anyone who needs a supportive ear.  So I won't delete my social media, but I won't be monitoring it as closely.  I'll be limiting my time spent scrolling, and I'll avoid all the political articles.  Go to my blog for the longer explanation of how I'm doing."  Yesterday was “Mean Girls” Day, October 3 rd , and George suggested we watch it.   I know he wanted to cheer me up and help, but I got sucked into the internet – again – and ended up binging on articles about PTSD.   I read about PTSD and chronic
Read more